Saja, a Syrian girl from Daraa suffers of Albinism, that characterised with white skin, hair, eyebrows and lashes, and severe sensitivity to sun light.
She left her hometown of Daraa 3 years ago and walk in the sun for 4 days to reach to Jordan, which worsened her condition and caused pigmentation of her skin and allergy.
She was not able to find a treatment to heal her condition completely from the disease, and she has appealed to humanitarian bodies to help her to receive treatment in Europe or other specialised centres.
Saja has a disease called Albinism, some time children who have it are called “children of the moon” due to their white faces which get pigmented with some brown dots and patches.
She had a brother suffered of the same disease, but he died due to his illness after having many operations.
Children with Albinism cannot play in sun during the day, because they easily get sun burn.
Besides her illness and suffering, Saja sometimes becomes subject to discrimination among other children for her white colour.
Albinism name came from the Latin word “albus” which means "white”, it is a congenital disorder characterized by complete or partial absence of pigment in the skin, hair and eyes due to absence or defect of enzyme responsible for making melanin in body.
Albinism results from inheritance of recessive gene, it is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation increases skin sensitivity and susceptibility to sunburn and skin cancers
